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blueeyedu2fanissick
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Name: Jennifer
Country: United States
State: Texas
Interests: Advancing the basic human knowledge of chronic illness and the daily life struggles those illnesses present.
Expertise: Spinal taps, neurosurgery, fighting doctors for decent medical care, spending time on the phone with my insurance company, and crying.
Occupation: Student
Industry: Art
Message: message meEmail: email me
Website: visit my website
AIM:  BlueEyedU2Jen
Member Since:
6/4/2005
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| An Update...finally.
Wow! I haven't written in ages. I honestly didn't know it had been so long.
I did great through the holidays. That is such a blessing because
I did so much. I kept pushing my body and expecting to get sick
but I never did. It's amazing to think that this time last year I
was in the hospital!
After a family vacation in December I returned home (on the 1st of
January) feeling rundown. I managed to catch a cold since my body
was so run down. Well, with the mixture of having a cold and two
new puppies to take care of I felt pretty yucky this last week.
Since I have a cough it has flared up my meningitis a bit. I'm
trying to rest and stay off my feet but it is proving hard to do.
There is so much I want to do right now! So many house
chores. So many places to go. But I'm finding time to be
thankful for the health I do have.
I feel like I've dropped out of touch with everyone over the last few
months and I promise I'm going to try and make an effort to keep in
touch. Thanks for the prayers.
Also, be sure to check on my regular blog: http://www.xanga.com/blueeyedu2fan as I seem to update that a bit more.
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| If the Pennant puts you in the ER, the World Series win will put you in the morgue!
That is what my mother said as I was laying in the ER last night.
My headaches are bad again. Plus I'm having blindness, dizziness
and numbness on my face and on my arms. After much talking and
dissecting what I've done over the past few days, we think alcohol
might be a trigger for my headaches. After the Astros win
everyone at our house was doing shots. Now, it could be
coincidental that I got ill at this time. I have been progressing
downhill lately. But we shall see. I'm going in for a Spinal Tap
soon as well as an MRI.
I did have a rather large and awful panic attack last night. One
of the medications they gave me (Reglan) caused it. It was so
bad. I kept telling my mom I felt really restless. Then I
was sobbing that I wanted to go home 'right now'. It was so bad
that even my mom was crying with me. But she's the best. She held
my hand, rubbed my back, and talked me through it until it
passed. I don't know what I would have done without her, but I
imagine it would have involved ripping out my IV and getting in my car. It's amazing how much drugs can mess up your mind.
Well, I just took some cold medicine and more prescription painkillers
so I think I'm going to try and go back to sleep. I'm not in the
intense pain that I was but my head feels very bruised. And this
cough is not making things better! | | |
| My eyes are fine
Well my eyes look good. Still healing up. They don't think
my eye problems have to do with the Pseudotumor Cerebri. Praise
God!
I am still having general health issues. My head hurts all the
time and I'm dizzy. I go see my Neurosurgeon on Wednesday.
He is going to run tests to make sure my shunt is still working.
This scares me. I hate tests.
Thank you for all of the prayers. I'll keep you guys updated.
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| Prayers Please
After doing great for so long, my health has taken a small turn for the worse over the last two
weeks. It started with more frequent headaches and
dizziness. Today I had a dramatic change in my vision. If
my vision stays the way it is, I go see my doctor on Friday. If
it changes, I'll be heading in to Methodist again.
There is a good chance this is just the process of my brain
healing. However, with 5 neurosurgeries under my belt since last
August, I'm terribly nervous. If you could, please just keep my
in your prayers. I'll try to be good about updating my
condition. If I head to the Hospital my sister will update for me.
Also please keep my friend Sara in your prayers. She had neurosurgery last week and is healing. She has PTC also. | | |
| Update
I'm doing well and my hair is growing so fast. I'm already doing
better physically. It is going to take a long time for my brain
to heal. It is so easy to get frustrated in times like this but
I'm trying to keep my eyes focused on the final result.
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